Wednesday, November 30, 2011

Here we go. . .

     So I have been thinking for some time now about starying a blog about my health and just general life. I figured that since so many people I come across with the Chiari Malformation just kind of give up, I would try to be my own inspiration. Maybe it will help me, maybe it will become a burden, maybe it will help someone else. Who knows? But I am at the point that I think it will be beneficial for me to do it, so here we go. . .

     I am 23 years old and have Chiari Malformation. I have had one decompression brain surgery and will undoubtedly have to have more at some point. They beleive that I was born with this and it was not discovered until as a teenager I caught Spinal Meningitis. After almost dying from that, all of the scans and what not showed that I had a very severe malformation. It obviously explained all of the issues that I had been having all of my life and put a name to a face so to speak. at 21 I had the surgery and I regret ever making that decision. before the surgery I had issues but since the surgery my daily life has been impeded way more than it ever was before. I have chronic pain, siezures, mild dementia just to name a few. I still get out of bed every day and play with my kids, talk to my family and love my husband. Its just a bit harder to do that it used to be. Existance isnt as simple as it used to be. Between the pain and all of the medication that I am on a lot of things have to be taken into account in my daily functions . . I for some reason dont feel like going into detail about the symptoms and what not, so Ill save that for an other post.

     I am not really sure what I expect to come of this or why the hell I even wanted to do this. Hell, I dont even realy know what constitutes a blog. . . But we shall see in time I guess.

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